Sunday, January 21, 2007
ZERO, YEAH!!!
Hello everyone! Devin is doing great. He had a biopsy on Wednesday and it came back zero. NO REJECTION, YEAH!!!!!!!!!!!!!!!!!!!! We are so happy. We always get nervous around biopsy time. With past experiences we know that anything can happen. We are doing biopsies at Doernbecher. Which is nice, since going to Standford every month would be draining on money. We have already maxed out on our primary insurance transplant coverage. We will have to go to Stanford on the yearly biopsies. I do not know how we will do it but we will figure it out some how. It would be nice to see everyone at Standford and see other transplant friends. We do miss all our transplant friends every much, and keep you all in our thoughts and prayers. His cyclo level was high, about 594. The doctors want the level between 300 and 350. They lowered his cyclo med and want us to get blood drawn again on Monday. Otherwise Devin is doing great. Right now his brother, who he loves so much, is fighting a cold. It so hard to keep Devin from getting it especially when all he want to do is play and follow Masen everywhere. A lot of hand washing and sanitizing going on right now. The kids enjoyed snow days all last week. Boy, did they get cabin fever fast. Devin loved the snow. If I let him he would of just lived in it. Everyone is doing great, finally back into a routine. Just enjoying each other as much as possible. Thank you everyone for all your prayers.
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1 comment:
Awesome news!!! So glad to see the little guy doing so well. I remember when Peyton would have high levels but wow 594! Amazing how that medication will make them behave differently too. Before you know it he will be down to just a few meds.
I was wondering if you have to go back yearly for a biopsy? We were told the same thing about Peyton, but to be totally honest, Doernbecher does the exact same things that the other hospital would do. We've never gone back for biopsies. Although we are thinking of transferring her care up to Dr. Law in Seattle. We will wait and see how things go with Dr. Armsby. We have our first appointment on the 15th of February with her. Kind of anxious about that.
Anyways i'm rambling!! Glad to see all is well. Hey are you working from home? I know how hard it is when you have to quit your job. I taught myself medical transcription and work from home. Finally found a good company to work for. If your ever interested let me know, I can help you out with some transcription study materials.
Take Care,
Rebecca Donaldson
rebdon101@msn.com
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