We have wonderful news. After a long month of negotiating, Lucile Packard Children’s Hospital (at Stanford University) has accepted Devin into their heart transplant program. We honestly did not think it was going to happen and were looking at other hospitals. Before we went down to California, the insurance company informed us that Lucile Packard Children’s Hospital did not send a letter stating that they accept the $250,000 maximum. The insurance company needs the letter to authorize the heart transplant so that it will be covered. Lucile Packard Children’s Hospital could not accept the $250,000 maximum because it was not nearly enough. The insurance company could not pay for the hospital visit because of this. We used $4000 of the money we had fundraised to pay for the evaluation. We decided to pay out of pocket because we wanted to get Devin on the heart transplant list as soon as possible. When we got down there and talked to the finical department they told us that the $250,000 is not enough. We told them that we had a secondary insurance and asked if that would help. The problem with the secondary insurance was that Lucile Packard Children’s Hospital was not a hospital that they contract with. The hospital talked with the secondary insurance and they agreed to match the primary insurance ($2500, 000). We have $500,000 in coverage and Lucile Packard Children’s Hospital said that it still would not be enough. We were getting upset and very frustrated. Here we are double covered and we were being treated as if we had no health insurance at all. We told them that we have raised close to $50,000 and would that help. The hospital still said it would not be enough. We were confused, frustrated, angry, and sad all at the same time. Here Devin needs a heart transplant and he cannot get it because people are afraid that they will not get paid. We will do anything to save Devin’s life and if that means fundraising, than so be it. We talked to the doctor and he said that Devin
needs to get on the hear transplant list within a couple of months or he will be too sick to get a transplant. We were devastated that he needs to get on the list and money was stopping him from get on it. As we left on the plane to go home, we felt that the trip was a waste of time. We got in touch with the insurance companies and the hospital to see what we could do. There was nothing really it was all between them. When we saw his Cardiologist here in Oregon we asked them if we could after other hospitals because we thought that Lucile Packard Children’s Hospital was out of the picture. Lucile Packard Children’s Hospital even told us to start looking at other hospitals. We stayed in touch with Lucile Packard Children’s Hospital they were working hard to get it to work. They wanted to help us it was just the upper management who were stopping them. By the grace of God we received word yesterday that the insurance companies and the Lucile Packard Children’s Hospital have come to agreement and are authorized to go through with the heart transplant. We never thought it was going to work out, but God has a plan. They said Devin will be on the heart transplant list next week sometime. The doctor in California said he wanted to see Devin and finish the blood work for the evaluation. Since the hospital wants Devin within 2 to 3 hours away from the hospital, Devin and Mom will have to move to California. We will are working on getting into the Ronald McDonald house. Dad and Devin’s three siblings will have to stay in Oregon. Dad has to work to keep the insurance and the kids have school. It is going to be trying time for us but we have faith that everything will work out. We are still in need to pay for the heart transplant. Lucile Packard Children’s Hospital told us that it might cost up to 2 million dollars. We know that is a far fetch number to so we are still fundraising to get as much money as we can get. We are setting a goal of $250,000. We are looking for any help involving donation, getting Devin’s story out there or whatever anyone can do. We thank everyone for supporting us. We truly appreciate it.
We have wonderful news. After a long month of negotiating, Lucile Packard Children’s Hospital (at Stanford University) has accepted Devin into their heart transplant program. We honestly did not think it was going to happen and were looking at other hospitals. Before we went down to California, the insurance company informed us that Lucile Packard Children’s Hospital did not send a letter stating that they accept the $250,000 maximum. The insurance company needs the letter to authorize the heart transplant so that it will be covered. Lucile Packard Children’s Hospital could not accept the $250,000 maximum because it was not nearly enough. The insurance company could not pay for the hospital visit because of this. We used $4000 of the money we had fundraised to pay for the evaluation. We decided to pay out of pocket because we wanted to get Devin on the heart transplant list as soon as possible. When we got down there and talked to the finical department they told us that the $250,000 is not enough. We told them that we had a secondary insurance and asked if that would help. The problem with the secondary insurance was that Lucile Packard Children’s Hospital was not a hospital that they contract with. The hospital talked with the secondary insurance and they agreed to match the primary insurance ($2500, 000). We have $500,000 in coverage and Lucile Packard Children’s Hospital said that it still would not be enough. We were getting upset and very frustrated. Here we are double covered and we were being treated as if we had no health insurance at all. We told them that we have raised close to $50,000 and would that help. The hospital still said it would not be enough. We were confused, frustrated, angry, and sad all at the same time. Here Devin needs a heart transplant and he cannot get it because people are afraid that they will not get paid. We will do anything to save Devin’s life and if that means fundraising, than so be it. We talked to the doctor and he said that Devin 
needs to get on the hear transplant list within a couple of months or he will be too sick to get a transplant. We were devastated that he needs to get on the list and money was stopping him from get on it. As we left on the plane to go home, we felt that the trip was a waste of time. We got in touch with the insurance companies and the hospital to see what we could do. There was nothing really it was all between them. When we saw his Cardiologist here in Oregon we asked them if we could after other hospitals because we thought that Lucile Packard Children’s Hospital was out of the picture. Lucile Packard Children’s Hospital even told us to start looking at other hospitals. We stayed in touch with Lucile Packard Children’s Hospital they were working hard to get it to work. They wanted to help us it was just the upper management who were stopping them. By the grace of God we received word yesterday that the insurance companies and the Lucile Packard Children’s Hospital have come to agreement and are authorized to go through with the heart transplant. We never thought it was going to work out, but God has a plan. They said Devin will be on the heart transplant list next week sometime. The doctor in California said he wanted to see Devin and finish the blood work for the evaluation. Since the hospital wants Devin within 2 to 3 hours away from the hospital, Devin and Mom will have to move to California. We will are working on getting into the Ronald McDonald house. Dad and Devin’s three siblings will have to stay in Oregon. Dad has to work to keep the insurance and the kids have school. It is going to be trying time for us but we have faith that everything will work out. We are still in need to pay for the heart transplant. Lucile Packard Children’s Hospital told us that it might cost up to 2 million dollars. We know that is a far fetch number to so we are still fundraising to get as much money as we can get. We are setting a goal of $250,000. We are looking for any help involving donation, getting Devin’s story out there or whatever anyone can do. We thank everyone for supporting us. We truly appreciate it. 
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